Friday, May 21, 2010

Update - 5/21 - MENINGITIS IS GONE!!!!

Campbell was up in Boston again this week for another spinal tap and an appointment with the neuro-oncology and Infectious Disease teams.

The best news of all is that the white cells in her spinal fluid were down to a normal range which means the meningitis is FINALLY gone! (only 7 months, 27 weeks of antibiotics and 2 surgeries later)

She continues to do well overall. Next month we will head back to Boston for her first "normal" cancer follow up MRI and appointment at Dana Farber. Hopefully, we have no reason to go up sooner.

Friday, May 14, 2010

Update - 5/14

Cam continues to do well (despite a fall off the playground that scared the heck out of us). Her bloodwork from this week came back with the creatnine levels much higher than last week and definitely higher than the doctors would like. After a brief discussion amongst the various "teams" taking care of her, they have decided to take her off of the antibiotic she has been on for the past several weeks. She was supposed to end it next week but they were concerned that it would potentially cause damage to her kidneys - a problem that we certainly don't need.

They will do the LP next week off of all antibiotics so we now wait and see how her body reacts to all of this. Hopefully, she does not start feeling sick again and the neck pain doesn't return. We are hopeful and cautiosly optimistic that she has put the meningitis behind her....

Her is a recent photo of her from her school "Mom's Day Luau"

With Love,

Greg, Robin, Caitlin, Caroline & Campbell

Monday, May 10, 2010

5/9/10 - Happy Birthday Campbell!

On May 9th, we celebrated Cam's 4th Birthday - appropriately, on Mothers Day! The celebration was particularly special for us this year and we enjoyed Saturday evening with her favorite dinner, cake and a special visit from Cinderella!

She continues to do well on the anitbiotics and next week she is scheduled to go to Boston for a "final" spinal tap to make sure the meningitis is completely resolved. She is doing great in school and we are looking forward to the next several weeks' end of year activities with an art show at her school followed by her dance recital.

Her last round of blood work raised some questions about her kidney function and generated some chatter about taking her off the oral antibiotic. She will have some additional blood work today see where that number is and if it is still going the wrong direction, they will stop the antibiotic and do the final LP off of everything (yikes...)

Thank you for your continued support and prayers - we are sure that they are what got her to her big day!

With Love,

Greg, Robin, Caitlin, Caroline & Campbell