Update - 9/1

Unfortunately, we had a bit of a setback. Last night, we noticed that Cam's hair was wet around the incision and the collar of her dress seemed to be damp as well. Since we had not given her a bath yet, we figured it could not be a good sign...

A quick call to Dr. Mazzola earned us a trip to the ER at Morristown for another battery of tests. More bloodwork, another CT of her head and a spinal tap and we were back up into the PICU. It seems that the fluid was not draining properly from her head even after having the tumor removed. This is not uncommon at all. This morning, Cam had a permanent shunt put in to help drain the fluid from her brain. It is not at all uncommon and the procedure ONLY took about an hour and a half.

On the bright side, they were able to do the spinal tap that was originally scheduled for the 14th of September during the procedure. This will give the oncology team a look to make sure that there are no cancer cells in her spinal fluid. The results of this test will determine where and what dosage of radiation is required. Unfortunately, we still don't have the final pathology report on the tumor so the exact next course of treatment is still unknown.

Once again, we are amazed at what a strong little girl she is. She is back up in her room now and has had some juice and a snack and seems to be tolerating it well.

We thank everyone for their continued thoughts and prayers.

With Love,

Greg, Robin, Caitlin, Caroline and Cam