After a busy but productive week in Boston, Robin and Campbell are home again. She is feeling good and continue to improve each day. Here is the latest:
Cam had another spinal tap on Tuesday afternoon and the WBC count in her CSF was down to 12. This is still elevated which is a bit discouraging but the infectious disease team is not too concerned with it. The rest of the appointments were uneventful - the neuro-surgeon was happy with her progress, ID was glad to see the numbers going down to 12, and neuro-oncology was glad to see her continue to improve. The plan based on the WBC count is to keep her on the meropenom antibiotics for one more week followed by 4 weeks or cipro (by mouth). So the PICC line will come out next Wednesday ! WAHOO !!! Good-bye super-tube!!!
The last thing on her schedule last week was a bone scan to make sure there was no sign of a bone infection. They were interested in this judging from the fact that the bone flap they removed grew bacteria. The good news on that is it was completely NORMAL (that's a first) - which gives them more confidence that the infection will not come back and that she will finally have put the meningitis behind her!!!
She will go back to Boston the end of May for another spinal tap to make sure that she is all clear meningitis-wise and to have her "normal" MRI as it relates to the cancer to make sure there is no new tumor growth.
Yet another whirlwind of activity for Cam but she was able to run with her cousins for Easter and is back to school again...she is our little hero.
With Love,
Greg, Robin, Caitlin, Caroline & Cam
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