Wednesday, April 28, 2010

Update - 4/28

Campbell continues to improve and was able to get her PICC line removed last week on Wednesday. She has now moved on to oral antibiotics for the next 5 weeks.

She goes back to Boston at the end of the month for a final LP to make sure that all of the white cells are removed from her system and then we will hopefully be able to put the meningitis episode(s)? behind her.

She was able to go back to school and dance class and is settling in to her new routine. Her sisters also seem to be doing better with the stability that has come back to our life. They will ALL be in dance recitals in June and it will be nice to have those events to enjoy.

Then later in June, she will head back to Boston for her first "normally" scheduled MRI to make sure there are no new signs of tumor. Fingers crossed that her progress continues to be positive!

With Love,

Greg, Robin, Caitlin, Caroline & Campbell

Saturday, April 17, 2010

Update - 4/17

After a busy but productive week in Boston, Robin and Campbell are home again. She is feeling good and continue to improve each day. Here is the latest:

Cam had another spinal tap on Tuesday afternoon and the WBC count in her CSF was down to 12. This is still elevated which is a bit discouraging but the infectious disease team is not too concerned with it. The rest of the appointments were uneventful - the neuro-surgeon was happy with her progress, ID was glad to see the numbers going down to 12, and neuro-oncology was glad to see her continue to improve. The plan based on the WBC count is to keep her on the meropenom antibiotics for one more week followed by 4 weeks or cipro (by mouth). So the PICC line will come out next Wednesday ! WAHOO !!! Good-bye super-tube!!!

The last thing on her schedule last week was a bone scan to make sure there was no sign of a bone infection. They were interested in this judging from the fact that the bone flap they removed grew bacteria. The good news on that is it was completely NORMAL (that's a first) - which gives them more confidence that the infection will not come back and that she will finally have put the meningitis behind her!!!

She will go back to Boston the end of May for another spinal tap to make sure that she is all clear meningitis-wise and to have her "normal" MRI as it relates to the cancer to make sure there is no new tumor growth.

Yet another whirlwind of activity for Cam but she was able to run with her cousins for Easter and is back to school again...she is our little hero.

With Love,

Greg, Robin, Caitlin, Caroline & Cam

Monday, April 5, 2010

Update - 4/5

One more week of antibiotics to go! Campbell seems to have turned the corner and is feeling good - though she seems to REALLY be sick of the antibiotics. She was finally able to make a family gathering and saw all of her cousins on Easter Sunday.

Next week, Robin and Cam head to Boston for a whirlwind of tests/appointments. She has an appt with the radiation oncologist, the neuro-oncology team, Infectious Disease team, Neuro-surgery, a neuro-psych screening, a hearing test, a spinal tap and a bone scan. Once these are all complete, we hope to finally be able to put the meningitis behind her and move on with the maintenance phase of her cancer treatment.

Thank you for all of your support, as always...

With Love,

Greg, Robin, Caitlin, Caroline & Cam