Home again!!!!!
After getting the final report about which indicated that the bugs were the same as before, they were able to send Cam home yesterday afternoon. She is still feeling a bit tired and unsteady on her feet but is so happy to be home with her girlies again!
The plan is for a 3 week course of antibiotics (meropenem) followed by another spinal tap to confirm that the white counts in her CSF are back to "normal". This time, it seems that they will be much less likely to accept 18 as her baseline. We will also plan to follow up with neuro-surgery, neuro-oncology and radiation oncology (in addition to Infectious Diseases) during her trip to Boston in mid-April. This trip was originally scheduled to only be with the neuro-onc team and to have an MRI (her normal maintenance plan) but as we all know, Cam does not particularly like the land of normal.
So we will continue with her antibiotics via "Super-Tube" for the next several weeks and hope that she makes the progress all the doctors expect.
Fingers, toes & legs are crossed while saying a big prayer that this is the end of the infection and we can go back to the easy stuff - cancer....
With Love,
Greg, Robin, Caitlin, Caroline & Campbell
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