Monday, October 5, 2009

Update - 10/5

Cam had a good morning this morning and a not so good afternoon as her vomiting returned. We are hoping that it was because she slept through her dose of pepcid yesterday. We spoke with the neuro-oncologist today and since we are going to Boston TOMORROW anyway, she was content to watch and see since there was no fever associated with it (or at least very low grade).

The visit tomorrow was a last minute change to our schedule which we did not expect. We got a call from Dr MacDonald- the radiation oncologist - (add her to the list of doctors caring for Cam) who wanted to get some of the preparation appointments out of the way so that Cam could start the radiation treatment as soon as possible. This is good news as the sooner she starts the better the results. So we will meet tomorrow early afternoon with the anasthesiologist and one of the nurses at Mass General Hospital. She will then have a CT simulation on Wednesday morning. This is a simulation of the treatment that she will get but with no radiation involved. They will then use this to map into the machine her treatment, location of radiation dose, etc. It's pretty high tech and intimidating stuff but they treat many patients with this and the results thus far have been positive. The protons slow down faster than the normal photons and the hope is that the side effects and damage to surrounding organs/tissues is minimized - which is really good especially if you are radiating the brain of a 3 year old. The potential upside was enough to sell us on it.

Then on Wednesday afternoon we will meet with Dr MacDonald to have a more in depth discussion of the treatment, side effects, schedules and time lines. This is going to be a VERY difficult discussion as it will no doubt be much of the worst case scenarios.

Yesterday's Ride for the Cure was a huge success! We continue to be amazed by the generosity of our family and friends. Thank you to everyone who came out to support Cam - EMS Angels MC and their fellow clubs, Bernardsville Fire, Bernardsville HS (thank you Scott Gunderson for your work), our family and friends...the list goes on and on and we can never thank you all enough. We are truly blessed to have you all in our lives.

With Love from HOME,

Greg, Robin, Caitlin, Caroline & Cam

1 comment:

  1. Wow, that was a busy 4 days! We wish you another productive trip in Boston and will be surrounding you with a big hug while you go through these difficult days. When things get tough, take a deep breath, think of the progress you've made so far and press on. Always thinking of you. XOXO
    The D's