Thursday, September 24, 2009

Update - 9/24

Campbell had a great night last night. She played with "Nanny" while we both made it to back-to-school night at Caitlin's school. It was actually rather odd to be together somewhere other than the hospital. She did not have a fever all night so we are hoping that means she can venture outside her hospital room today to play a little bit. You have to be 24 hours fever free before you can go to the playroom.

On schedule for today is a CT of her head to make sure that the ventricles are in the right configuration or if there is excess fluid accumulating somewhere. Unfortunately, this requires contrast to be adminstered to get a clearer picture. Why is it unfortunate, you say? After all, she does have a PIC line so they can just give it to her through there....NOPE!!!! Some doctor, in their infinite wisdom, have given her a different type of PIC which is not compatible with the contrast despite the fact that there is one that can perform all the functions that she needs (sedation, IV antibiotics, and contrast). This would seem silly under normal circumstances but since she is going to have mutliple CT scans during the coming treatment, it seems particularly short sighted of them. Needless to say, we are quite upset that Cam has to get ANOTHER poke today for this. She had been really perking up and this is just another thing that is going to upset her.

As of this morning, we are still on track for discharge on Friday. The plan is to get another spinal tap on Friday morning and perhaps an MRI - depending on what todays CT shows. Then she can go HOME!!!!

You are all being so generous with your prayers, if you could just add one little one for her to get home on Friday, she would really appreciate it (and her parents wouldn't mind so much either).

With Love,

Greg, Robin, Caitlin, Caroline & Campbell

1 comment:

  1. Consider it done! I will gladly say more prayers for Cam. I have been praying for her in a couple of languages and more than one faith. Wearing wish beads on my ankle too. Whatever it takes. Love you all. May it be another peaceful night.
    "Mrs. Lev"